Summer Holiday Childcare Survey

We’re running a survey about summer holiday childcare for disabled children.  Can you find appropriate and affordable summer holiday childcare in your area?   A few years ago we ran a similar survey and we’re hoping to see if things have changed. If you’re the parent of a school age disabled child (5-18) please click on to do the survey.  Tell us about the good news and what needs to change.

Please complete the survey by Sunday 18 August 2013 and watch this space for the results!


Survey – has your child spent time out of school?

Ambitious about Autism are looking for families with children and young people with autism who have spent time out of school.

If you’ve experienced official or unofficial exclusions complete their survey here:  by 19 July 2013

Or if you’d like to act as a case study for their research to understand the challenges families face and how they can be addressed,  have a look at their website here:


Adjustment leave raised in the Lords

Great to see adjustment leave raised in the House of Lords during the Second Reading of the Children and Families Bill this week:  Lord Stevenson of Balmacara said:

“The Working Families recent survey of 1,000 parents of disabled children found that 27% of respondents were not in paid work, and more than 80% of those had given up work to care for their disabled child. Once out of work it is very hard to get back in. More than half the parents surveyed had been out of work for at least six years. Their talents and skills are lost to their employers. Their families are left poorer and the economy loses. That has led to suggestions for adjustment leave to support parents and carers through a crisis so that they can stay in work and out of poverty. I would be grateful if the Minister could comment on that idea.”

Read the whole debate with many passionate speeches about the need for better support for disabled children and their families here: